Auto rally across scenic Mid-Atlantic America to raise money for CURE
CURE | Citizens United for Research in Epilepsy
September 30th – October 2nd, 2016
Hershey, PA (September 23, 2016) – Twisting through the scenic mountains, surrounded by over 60 sports cars, muscle cars, and other unique rides, searching for secret check points at incredible locations – this is the 4th Annual Ohio Valley 700.
The Ohio Valley 700 features 50 teams of two or more people, and 28 stops at historical and scenic locations across the Lincoln Highway of Pennsylvania, through the mountains of West Virginia, & the rolling hills of Ohio.
The Ohio Valley 700 gets underway on Friday, September 30th from AACA Museum in Hershey, PA and will crisscross the Appalachian Mountains through Deep Creek Maryland, Snow Shoe West Virginia, and finishes on Sunday, October 2nd in Athens Ohio.
Specific, secret check points that must be navigated along the route are not revealed to the participants until they leave their starting points each day.
Established in the winter of 2009, Rally North America Charities (www.RallyNorthAmerica.com) is a not-for-profit organization aimed at bringing automotive enthusiasts from all over the United States and Canada together for the purpose of auto rallying.
Each rally organized by Rally North America (RNA) carries a common idea – driving for a cause. RNA believes that by combining the love of the automotive lifestyle and a worthy charity organization, it is possible to do something “good” through the automotive hobby. Rally North America events have raised more than $620,000 in direct donations to the charities chosen as beneficiaries.
Rally North America participants are required to provide a professional and respectful representation of the automotive community to everyone. Participants must follow the rules of the road and are expected to be courteous to the drivers with whom they are sharing the road at all times.
All Ohio Valley 700 sponsors have made direct donations to our charity. Special thanks to CJ Pony Parts, Lead.CO, Insure.it, Carlisle Events, and Penn Tech Deployments.
Our Charity for 2016
Citizens United for Research in Epilepsy (CURE), is the leading nongovernmental agency fully committed to funding research in epilepsy. The organization was founded by Susan Axelrod and a small group of parents of children with epilepsy who were frustrated with their inability to protect their children from seizures and the side effects of medications. Unwilling to sit back, they joined forces to spearhead the search for a cure.
Since its inception in 1998, CURE has been at the forefront of epilepsy research, raising more than $32 million to fund research and other initiatives that will lead the way to a cure for epilepsy. CURE funds grants for young and established investigators and has awarded more than 180 cutting-edge projects in 13 countries around the world to date.
In May 2014, CURE launched a new signature program, the Epilepsy Genetics Initiative (EGI). With an initial $1 million in funding, EGI will create a comprehensive, interactive database where patients can have their genetic data repeatedly analyzed in an effort to identify the cause of their epilepsy. These data will also be made available to epilepsy researchers in an effort to find new causes of epilepsy and use these findings to guide treatment. EGI brings patients, medical professionals, and researchers together in a mutually beneficial way to advance the genetics of epilepsy and to help create a culture of personalized medicine for people with epilepsy.
The leader in Sudden Unexpected Death in Epilepsy (SUDEP) research, CURE has awarded 21 SUDEP-related grants, totaling more than $2 million, since 2004. In 2012, the organization pioneered the first-ever Partners Against Mortality in Epilepsy (PAME) meeting and launched the Infantile Spasms (IS) Research Initiative to accelerate the understanding of IS and advance a new, innovative therapy into the clinic. With $2.1 million in grant funding to date, eight teams of investigators are focusing on cutting-edge research for IS, a rare childhood epilepsy syndrome. The project involves investigators at multiple institutions around the country and uniquely promotes a multidisciplinary, team science approach that encourages collaboration between researchers.
CURE boasts an internal scientific team made up of three accomplished epilepsy researchers, committed to helping find a cure. There is a Scientific Advisory Council comprised of five esteemed epilepsy specialists and more than 300 scientist volunteers who lend their expertise in the field to review grant applications. CURE has a Lay Review Council (LRC) made up of volunteers who have a special interest in understanding epilepsy research. Members of the LRC participate in CURE’s grant review process and read research proposals to ensure the stakeholder point of view is critically represented at all stages.
In 2000, CURE co-sponsored the National Institutes of Health Conference—the first of its kind to focus on a cure for epilepsy. In addition, CURE was one of the key sponsors involved in shaping the direction and outcome of a newly commissioned report released in March 2012, The Public Health Dimensions of the Epilepsies. The organization was instrumental in the creation of the NIH Epilepsy Research Benchmarks, which were created to help guide the community toward a cure.
CURE has led a dramatic shift in the epilepsy research community from simply treating seizures to enhancing understanding of underlying mechanisms and causes, so that cures and preventative strategies can be found. CURE’s research program is cutting-edge, dynamic and responsive to new scientific opportunities and directions through both investigator-initiated grants and unprecedented scientific programs and initiatives.
Tireless in its efforts and determination, CURE won’t stop
until a CURE is found for epilepsy.
For more information about CURE see the link below.
To see Rally North America’s fund raising progress for CURE click HERE
Starting Line: Friday, September 30th at the AACA Museum in Hershey (7:30 – 9:00 AM )
Finish line: Sunday, October 2nd in Athens, Ohio (5:00 – 7:00 PM)
For more information about the Ohio Valley 700, visit www.RallyNorthAmerica.com or contact Tony@rallynorthamerica.com or Scott@rallynorthamerica.com